Over the past few weeks, I’ve been bombarded with random thoughts and ideas in the midst of the work day … but instead of pushing them to the side, I’ve been able to write some of them down with the desire to try and write more about them. Here’s a sample:
– 2 feb 2010
—> balance (of life, of decision making, of information giving …)
I had a family meeting with a patient I met through urgent care. He is in the midst of a work up for vague symptoms, with a likely terminal prognosis. As I sat there, trying to wade through the information we had and that which we needed, I realized that there is a fine balance involved in all aspects of medicine … especially when it comes to end-of-life care. With meetings like this, there is so much information that can be relayed; however, even knowing the importance of full disclosure of all facts and findings, there comes a point where the information is emotionally and cognitively too much. Add to that the necessity of giving the data in a sensitive and understandable fashion; something always becomes lost in translation this way.
Once the information is given, decisions need to be made. How many interventions do we want, just to seek a confirmation of the likely diagnosis? How invasive should the treatment be? How much should we focus on the quality of life left versus the quantity of days left? How much should the family make the decisions in place of the patient? There is an almost palpable tug-of-war whenever these sorts of questions need to be answered, with the patient’s best interests in the middle. The worse part of this for me has been when the family wants me to add my thoughts, especially as the whole reason for a family meeting is so that I won’t be the one making any of the decisions.
—> semblance of confidence; play acting
Obviously, after a certain amount of training, there is an expectation that we as medical professionals have a clue all of the time. And while this is true a fair amount of the time, there are cases where the information requested or needed is above and beyond our training or current knowledge base. Now, I’m definitely one of the first people to admit when I’m not sure of something, and I’m always more than happy to look it up. But, in times when the uncertainty has more to do with the situation, and not the medical knowledge, there’s nothing to look up. Again, remembering that family meeting, I felt so out of my league, as I had yet to have such an intense discussion, especially with a patient with whom I had a very minor relationship. But, letting that unease show would have been possibly harmful to the meeting. So, I did my best to hide my discomfort, and just help the family wade through what was happening to the patient.
14 feb 2010
–> realizing that i do not have a home … that sense of ownership/lived in location, w/ family/pets/friends/a neighborhood … and it is nearly impossible to get in Zuni!
I had gone to Albuquerque to attend a friend’s baby shower, and was able to stay at their relatively newly bought house. Seeing their renovations and aspirations for future changes, as well as those of their friends, made me (for the first time) wish I could be going through the motions of homeownership. Granted, I know absolutely nothing about that, as I’ve lived in rented property my entire life … and I’ve never owned anything more than pets. And, I have a pretty good living situation in Zuni, being able to walk to my friends’ houses (well, most of their houses), and work, and the Wellness Center. But that sense of settling won’t be something I have here. The best I can do is make a home where I fell happy and at peace, both inside (with renovations like painting) and out (with environmental changes and community building).
16 feb 2010
—> the finality of a diagnosis that is terminal … a stark truth that was known but hidden …
Back to that patient with whom I had the family meeting … given the constellation of symptoms and lab tests, the patient had a diagnosis that was most likely terminal. I spoke with my colleagues, sharing the story, and they all agreed. But, we didn’t yet have more confirmatory testing; that was what I needed to start arranging after the family meeting. The patient was sent to another facility for one of the less invasive tests which would help continue to clarify his illness. I had to hunt down the results, and finally got them (before they were sent to the specialist). My heart sank as I saw the one line impression on that piece of paper, because it made the diagnosis even more real. I don’t think I was in denial about what was happening to the patient, but a very small part of me had some doubt (“What if I’m having a family meeting about a wrong diagnosis”) and some hope (“Maybe his illness isn’t that bad”). This test result put those feelings to rest. And, while it simplified the situation from my perspective by narrowing the options of diagnoses and treatments, it complicated the lives of the patient and his family.
Wow … those are all somewhat morbid/depressing, aren’t they? I do have some more positive thoughts … but I think the more meaningful ones have been these harder to process thoughts. Maybe I’ll put some happier thoughts up later …